NICE approval: the anxious wait for life-changing drug decisions | BBC News
Excerpt from BBC News: “When Mike Thomas first started receiving life-extending medication for his motor neurone disease, he described it as “a glimmer of hope”. Mr Thomas, 60, said his experience since being diagnosed with the degenerative condition in 2022 has been “devastating”, but believes deterioration has been slowed since he started receiving tofersen.
But uncertainty remains about the medication’s availability, and Mr Thomas is among a number of people with a range of health conditions who feel their fate is not in their hands as they await drug approval decisions.” Read more.
AMA, researchers aim to reduce and better understand drug shortages | Medscape
Excerpt from Medscape: “With the number of US drug shortages being one of the highest seen over the past 10 years, the American Medical Association (AMA) has adopted policies aimed at mitigating them, and researchers offer their understanding of what’s driving these challenging events.” Read more.
Europe launches medicine shortage monitoring in 2025 | Euronews
Excerpt from Euronews: “A new monitoring platform developed by the EU’s medicine agency (EMA) is expected to change tack on shortages reporting this year, aiming to tackle challenges in managing shortages by improving data collection, sharing, and analysis.
The EU has always faced a significant shortage of ‘information’ on medicine shortages. Disruptions in drug availability are often underreported to medicines agencies across Europe or reports are delayed due to reliance on private companies for supply chain data.” Read more.
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